Work Package Leader:

Hanna Kuusisto
Professor of Customer and Patient Safety, University of Eastern Finland


Kaija Saranto
Professor (emerita) in Health and Human Services Informatics, University of Eastern Finland

Virpi Jylhä
Postdoctoral Researcher, University of Eastern Finland

Milla Rosenlund
Researcher, University of Eastern Finland

Tuuli Turja
postdoctoral researcher, Tampere University

Anna Vahteristo
Researcher, University of Eastern Finland

Päivi Hämäläinen
Researcher, University of Eastern Finland

  • Patient-generated data is a key in enabling the integration of patient preferences and values in clinical decision-making. 
  • Information literacy is connected to patients’ possibilities to participate in shared decision-making and to produce holistic data concerning their health information. 

What we do 

In the multidisciplinary work package 3, information literacy of patients and healthcare professionals is studied from the perspectives of patient safety, health and human services informatics, and social psychology. The work package explores the use of information in decision-making, focusing on the practices of patient-generated data, and the ways in which decision-making practices promote treatment adherence. The main focus is shared decision-making in treatment of epilepsy and MS patients. 


International research collaboration stands out in this work package and has enabled the translation and validation of established scales in order to study shared decision-making and information literacy among Finnish samples. The first part objectives have included 1) a scoping review of the meaning and content of patient-generated data in epilepsy care decisions, 2) applying a measure for shared decision-making (SDM-9) as a part in a multimethod study design, 3) applying the readiness and enablement index for health technology (READHY) among MS and epilepsy patients. In addition, the studies in this work package are being carried out in collaboration with Associate Professor Patricia Dykes (Brigham and Women’s Hospital, Harvard Medical School, Boston, USA), which has allowed her to visit Kuopio and vice versa for a research visit to Boston, USA. 


Our focus 

One of the aims is to produce information to support the development of digital decision-making tools. This is achieved by modelling user acceptance, readiness and information literacy in association to the adaption of digital healthcare services.